"Milksharing on Facebook: one year later"

With the whirlwind of starting homeschooling and getting ready for Halloween, I completely forgot about our first anniversary!  October 28th marked the first anniversary of the launch of a global milksharing network on Facebook!!  I can NOT believe that it's already been 12 months- it seems like just weeks ago we were setting up pages and organizing hundreds of volunteers and pulling together press releases..... WOW!

Jodine's World's article  "Milksharing on Facebook: One year later" sums it all up perfectly!!

It's been a whole year since Emma Kwasnica's Facebook milksharing network  was launched. I can't believe it's been that long - seems like 10 minutes ago I was blogging about the six-month anniversary with my post, "A funny thing happened on the way to the milk bank."
Early on there were some bumps for global milksharing - understandable as 300 volunteer admins struggled to set up and run local communities using Facebook. Just as individuals struggle with the love-hate relationship with Facebook, so did the admins managing over a hundred community pages in 50 countries around the globe.
 Then there were some personality clashes - the original Eats on Feets Arizona community page founder parted ways with the global network after asserting her rights to her name. The global group became Human Milk 4 Human Babies (HM4HB) and while moms just kept right on offering up surplus milk and babes continued to receive it, the name change has hampered the growth of this network. There are still some Eats on Feets pages around and families new to milksharing can't always find their active local communities. And these days the Eats on Feets website has been hijacked by someone peddling breast implants and pregnancy diets, creating the potential for confusion for individuals and even reporters looking to do a feature on the one-year anniversary of the movement.
But Human Milk 4 Human Babies hasn't lost any steam and in September it sponsored the first World Milksharing Week with broad worldwide participation from Australia to Arizona.
 And although France joined the US and Canada with official warnings about the dangers of informal or Internet-based milksharing, three well-known academics published a supportive commentary in the International Breastfeeding Journal. "Milk Sharing: from private practice to public pursuit"  has become the most accessed item on the IBJ website this year. Authors James Akre, Karleen Gribble and Maureen Minchin argue the risks of milksharing are manageable and conclude: 

 

"this made-by-mothers model shows considerable potential for expanding the world's supply of human milk and improving the health of children." Akre, Gribble, Minchin, IBJ 2011

HERE to read the entire article on Jodine's World

So much has happened in the past year.  Human Milk 4 Human Babies has grown bigger and faster and busier than we ever thought possible at this time last year.  Mothers are coming together all over the world to create "communities" to support each other and insure that babies are getting the breastmilk they need to grow and be strong and healthy.  This is the Vision and Mission of HM4HB: to promote the nourishment of babies and children around the world with human milk. We are dedicated to fostering community between local families who have chosen to share breastmilk.

Our Vision

HM4HB is a global milksharing network, a virtual village, comprising thousands of people from over fifty countries. We are mothers, fathers, adoptive families, grandparents, childbirth and breastfeeding professionals, volunteers, supporters, donors, and recipients that have come together to support the simple idea that all babies and children have the right to receive human milk. We use social media as a platform for local families to make real-life connections and come together as sustainable milksharing communities where women graciously share their breastmilk. HM4HB is built on the principle of informed choice: we trust, honour, and value the autonomy of families and we assert they are capable of weighing the benefits and risks of milksharing in order to make choices that are best for them. We hold the space for them and protect their right to do what is normal, healthy, and ecological.

Breastmilk, the biologically normal sustenance for humankind, is a free-flowing resource and mothers of the world are willing to share it. Milksharing is a vital tradition that has been taken from us, and it is crucial that we regain trust in ourselves, our neighbors, and in our fellow women. Feeding any breastmilk substitute is not without risk and we support the families who know there is another option. We are the bridge that connects local families and brings them together again as milksharing communities. Indeed, the future of humanity depends on our return to sharing in a local and tangible way with one another.

We want milksharing and wet-nursing to be commonplace and babies to be fed at women's breasts whenever and wherever they need it. We dream of a world where mothers from previous generations pass on the tradition of breastfeeding and are a wealth of knowledge and support. We can forsee a time when women protect each other and help one another feed their babies so that every mother feels whole and no mother feels broken or that her body is failing her. We imagine a world where family members, friends, lactation consultants, doctors, and midwives do not hesitate to recommend donor milk when it is needed. We envision a future where families come together to raise this generation, and the next, by nourishing human babies everywhere with human milk and unconditional love.

Every person of the world is invited to join HM4HB. Page administrators, members, donors, recipients, and supporters are all important for building local, real-life communities where acquiring donor milk is no different than asking a trusted neighbor for an egg. We hope that one day in the future all babies in the world will thrive and grow on mother's milk, and HM4HB will no longer be needed because wet-nurses and breastmilk are available on every street, village, town, city, and island around the globe.

 For more information about Human Milk 4 Human Babies, please visit the website at: http://hm4hb.net/index.html  Visit the global fan page on Facebook: http://www.facebook.com/hm4hb

WMW: Milksharing Stories for Thursday

Welcome to World Milksharing Week- Thursday edition!

As I have a cold that's left me feeling like my head is the size of a boulder, and has barely left me capable of mustering enough coherent thought to be able to tie my son's shoes this morning, writing a well thought out and brain stimulating article is just not in the picture for today.  Sorry.  Instead I will post a couple of links to some great milksharing stories and will repost out the lovely story of one of my fellow HM4HB admins.

One of my favorite sites, "The International Breastfeeding Symbol"  has also been writing milksharing articles all this week in honor of World Milksharing Week.  Here is a list of links to their articles about mothers coming together to feed each others babies.  I know that you'll enjoy them as much as I have!

WMW- Sara's Story

WMW- Michelle's Story

WMW- Kristi's Story

WMW- Cindy's Story

WMW- Angela's Story

WMW- Recipient & Donor Story

And now I'm going to cheat and copy an article that I wrote last December.  Forgive me: the body is willing but the mind is weak, lol.

Infant Formula: It's not "Good Enough"

Before the  formula lynch mob hangs me for the following comment, I just want to say something:  This is not about guilt.  This is not about trying to make mothers who've used formula feel guilty.  If you want to debate the "Guilt Issue" go read my article "Breastfeeding: guilt, statistics, support, and making a choice"    (and the article I wrote last week: "The little voices called "Guilt" & "Shame") and then we'll talk.  This is not about feeling guilty for using infant formula. This is about not having to "choose" to use infant formula. This is about actually having a choice and making the best choice for your baby and your family.

When breastfeeding is difficult, or when it goes terribly wrong, it can be absolutely devastating for mother and baby.  Mothers who have done their research and made the choice to exclusively breastfeed their babies already know that "breast is best", they know that breastfeeding is NORMAL.  More importantly they know about the risks associated with feeding your baby infant formulas. So when nature throws moms a curve and forces them to have to rely on something other than their own breasts to nourish their child, it can be completely overwhelming.

The first thing moms need to do is to get professional help.  See a certified  Lactation Consultant/IBCLC to try to work through the problem:  Is it a poor latch?  Why is baby's latch not good enough?  Is baby tongue tied?  Does mother simply need help with positioning?  For most situations if you fix the latch you fix the supply problems.

But what if the problem isn't so easily fixed?  What if the problem is one that is unfixable?  What then?  Babies need to be fed and when the mother is not able to produce enough milk to exclusively breastfeed, then they have to turn to another source of nutrition. Up until the last 60 or 70 years, the natural thing to do would be to use donor milk or a wet nurse- whether it was your sister, cousin, aunt, mother, friend or another local mother who was already breastfeeding her own baby.  Mother to Mother milk sharing and tribal nursing was so common that is was the accepted method of feeding babies who needed milk.

Now of course we are living in the era of commercially prepared infant formulas.  "Wet nursing" is a word that's fallen out of fashion and tribal nursing, if done at all, is done behind closed doors.  Now if a mother is unable to produce enough breastmilk the medical machine automatically hands her a can of formula and sends her on her way. WHY? Why formula instead of donated breastmilk?  Because infant formula is a huge industry and pays out millions of dollars in advertising and promotions, sponsors medical associations and medical schools, buys doctors fancy briefcases and sports cars, sends hospital executives on Caribbean cruises and gives maternity wards thousands of cans of their product to use and give away.  Money talks, and "Breastmilk" doesn't have any executives to pay off government officials to use their products.

Up until the 1980's there were breastmilk banks scattered all over North America to facilitate the feeding of preterm and fragile infants in hospital NICUs.  Then came the AIDs scare and the vast majority of milk banks closed their doors- leaving just 10 banks in the US and one lonely milk bank in Canada. I plan on doing some investigating into the closure of these milk banks because I'm a firm believer that money talks and if doors were closed, then someone somewhere told them to close and paid for them to stay that way. There is only one industry that stood to gain anything from the closure of breastmilk banks.  Call me a conspiracy theorist, but if it looks like a duck and quacks like a duck, I'm going to call it a duck.

Recently the Canadian (and US) governments have been talking about the need for Breastmilk Banks, about how vitally necessary breastmilk is to our most fragile citizens.  Dr. Sharon Unger was quoted inThe Toronto Star in November as saying:

“We’ve long, long, long wanted a milk bank in Ontario,” says Dr. Sharon Unger, a Mount Sinai neonatologist.
“Our hope is that we would supply milk to all of Ontario, so we’d have depot sites or collection sites throughout the province and we’d be a central processing plant,” says Unger, who is medical director of Toronto’s Milk Bank Initiative.
The group is currently in negotiations with the provincial health ministry to fund the project. Unger says a final price tag has not been determined, but that it would be a multi-million-dollar venture.
“It does of course cost more to process human milk than cow’s milk,” she says.

...and as I said at the time:

Applause, yes applause.  It's a wonderful thing that the media has jumped on the band wagon and is making public announcements like this, I mean,  any publicity is good publicity KWIM? Horray for Breastmilk!
But I have to admit that it irks me.  Mothers and Doctors, like Dr. Jack Newman, have been crying out for Milk Banks for Years- YEARS!!!! Not only that, but Canada does have a Milk Bank in Vancouver BC... a milk bank that they have been trying to close down for years!!  I wrote an article on the topic just a couple of months ago: Canada Needs Milk Banks!!!

And I still agree, We NEED milk banks!!!  But you know what? If we wait around for the government to get off their bureaucratic asses to build even ONE milk bank.... I'll probably already be a grandmother!!!  And when we get milk banks, will they help the babies that are healthy but need milk?  Will they give milk to mothers with low supply?  Adoptive mothers?  Mothers with babies that have special needs like Anaya? NO, they won't.

So we return to the original topic:  What if the mother isn't able to exclusively breastfeed?  What if she has low supply? What if the problem isn't so easily fixed?  What if the problem is one that is unfixable?  What then? Up until recently your only choice would of been feeding your baby infant formula.  Not much of a choice is it?

Now  you can choose to feed your baby donated human milk.  Mothers have had enough of waiting for the bureaucrats and money grubbers to build milk banks.  Now mothers have taken back their autonomy and are supporting other women and families.  Milk Sharing is the wave of the future.  Milk sharing is making a difference and helping families and babies.  And Human Milk 4 Human Babies is leading the way!!!

Here is another amazing story of one mothers struggle to breastfeed her baby and how milk sharing made a huge difference in her life!!!




Ruby's  Story
By Kim Parent

"I can’t remember when I made the decision to breastfeed my daughter – I just know that notbreastfeeding never occurred to me. There were many compelling reasons to nurse, including cost, health benefits, and convenience. My partner and I collected books about breastfeeding during pregnancy and we educated ourselves about the subject. I learned what myths and traps to look out for, and prepared myself to stand up against the well-meaning medical staff who might want to supplement my baby with formula. Fortunately I had a trouble-free birthing experience.

However, within the first week it became obvious that something wasn’t right. Ruby would not keep her latch for more than a minute or two. She would unlatch, crying and screaming, over and over again. After several tearful days, we called an IBCLC. She was finally able to tell me why my daughter was so upset: I have breast hypoplasia, also known as IGT (insufficient glandular tissue). Hypoplastic breasts never fully develop, and they lack an adequate amount of milk-producing mammary glands. I was heartbroken.

My lactation consultant wrote a plan of action that would hopefully allow me to increase my supply while supplementing my daughter. With great effort, I was able to approximately double my milk production, to a maximum of a few ounces per day - not nearly enough to meet Ruby’s needs. We were supplementing with approximately 20 ounces of formula per day. We were not prepared to accept that formula was “good enough”,  being fully aware of the risks associated with artificial feeding. We could see that her little body was having trouble digesting the formula. She was very constipated, and she would scream and cry for hours. We tried many different brands, but her symptoms were always the same. I turned to my lactation consultant for advice on donated breast milk.

In all of Canada, there is only one milk bank, located in Vancouver, BC. Currently they cannot keep up with the demands of their own NICU. Even if there was enough milk available, the cost can easily be prohibitive. At $1.25 per ounce (which is much less than the cost of banked milk in the U.S.), it would cost us at least $750 per month to feed Ruby exclusively breast milk.

For our family, the answer was informed, mother-to-mother milk donation, not unlike wet nursing. We found several online resources to facilitate this, including the Human Milk 4 Human Babies Global Network on Facebook. Thanks to fifteen generous women, my daughter has received thousands of ounces of breast milk. She has not had a drop of formula in over three months! She is a different baby now – no more colic, spitting up, or constipation. She is hitting all of her developmental milestones and is just a radiantly beautiful and happy little girl. I still grieve the exclusive breastfeeding relationship that I had planned to have with her. However, I finally feel confident that she is receiving the best nutrition that I can possibly provide for her. I am eternally grateful to the amazing families who have helped us and for the support I have received from those around me.

Ruby at 3 weeks old

Ruby at 3 weeks old - at this point she had been supplemented with formula for over 2 weeks

Ruby at 3 months

Ruby at 3 months old, exclusively breastfed!

At 6 months old- 

A beautiful healthy Ruby at 6 months old!!

Breastmilk: It does a body good. Any body!

This week a blog, called "Don't have a cow, man." took the "lactivist" world by storm when a family announced that the husband was drinking his wifes breastmilk....ONLY breastmilk, no solid food, no other drinks.


Katie, who is a doula, childbirth educator, and lactation educator is one of those amazing women with the ability to pump large quantities of breastmilk.  Because of pumping for her preterm baby, born 9 months ago, she has amassed thousands of ounces of liquid gold in her freezer. When commentors asked why she had kept the milk and hadn't donated it Katie replied:

"About milk banks, they do not want the milk because it is too old, I took Motrin after giving birth, I took Tylenol a few times for headaches, and because I took nutritional supplements. Sick babies on other medications use the donor milk and they are concerned about drug interactions or side effects.
Why don't we pay to ship the milk to another mom? We can not afford to spend the hundreds of dollars that it would cost to ship just a portion of the breast milk. Shipping will be very expensive because it needs to be kept frozen. We are like many other families and are just trying to get by."

So when the family planned a long move and realized the magnitude of trying to move all this milk to another State, her husband Curtis decided to drink the milk himself.

"My wife has hundreds of bottles of frozen breast milk in the freezer that our baby will never have a chance to drink before they get too old. Since breast milk is healthy and we have plenty of it, why not just drink it all myself? In fact, why not drink only breast milk and see how long I can happily make it with no other food?
And yes, I know how weird this may sound, it is kind of weird to me as well but why not? I mean cow milk was made for baby cows, why not drink human breast milk that was made for baby humans?  
The rules:Nothing to eat or drink except breast milk.Blog daily about how I am feeling and how it is going.See how many days I can make it without other food."

I have read their blog, and several other blogs that have commented on it this week, and of course the commentary moves from  "yuck dude!" to  "that milk should be going to babies in need" , but in my mind few have really talked about the issue that stood out for me: The obvious health benefits that Curtis has gained from this "experiment".  Curtis has a history of stomach and digestive problems- from reflux, to vomiting and problems with bowel movements (due to hernia surgery scaring)

Here's the thing:  While Health Canada and all the pediatric societies chant the same Om of "Breast is best", we are still a culture that sees formula feeding as normal.  We hear about the health benefits of breastmilk, yet rarely does the media really report on the reality of the risks of formula. We know that breastmilk is better for babies tummies, yet hospitals, doctors, nurses, and other health care providers still turn to formula as the answer to most breastfeeding problems, without really giving a serious thought to the effects of formula on immature stomachs.

Now suddenly, we have a grown man, with a history of all sorts of stomach ailments, drinking human breastmilk- ONLY human breastmilk.  Three days in and his belly problems are gone. No more reflux, no more vomiting, no more bowel movement problems- not even diarrhea that several people said he'd have.  Here's a grown human, with the ability to speak and reason, telling us how much better his digestive system is feeling.....

....Imagine the difference on a small infant? Incapable of speaking and explaining how their tummy hurts.

I, like many others have said, would love to see this breastmilk going to a baby in need.  I've even messaged Curtis and his wife to ask where they are located to see if I can't guide them find a recipient through Human Milk 4 Human Babies in their area. But even if a family in need isn't found that can afford the shipping and packaging of the milk, I still think that this experiment that they have done has opened doors to other people- to seriously think about the validity of the tremendous health benefits of species specific breastmilk in the area of healing.  Not just in the case of cancer, like the amazing story of Howard Cohen , who was diagnosed with prostate cancer in 1999 and has used only breastmilk as his cancer treatment and kept his cancer in remission for 10 years!! , but the healing it can do to the digestive system- especially the digestive systems of fragile infants.  More so, it might make more people aware of the importance that human breastmilk plays on the health of humans of all ages, and give further insight into the dangers of commercial infant formulas.  Parents are constantly inundated with formula ads that grandly announce "Closest formula to breastmilk!".... but when it comes to the health of our babies, is "closest" really good enough?  

Eats on Feets & Human Milk 4 Human Babies: my personal perspective

I'd like to tell you my personal story of how I joined a Global Milksharing Network: my experiences with the people involved and where I am today.

Months and months ago I heard about a baby that needed donated breastmilk.  The story of Camara and Anaya touch me deep inside and I immediately posted here on my blog about their urgent need and their heartrending story. Not long after that I came across stories of other babies that also needed donated breastmilk, like Kelley's baby, and the amazing story of baby Jayden. From then on I always kept my ears and eyes opened for  stories like theirs and tried to do what little I could to help moms find human milk for their babies.

October 2010 rolled around and a friend of mine Emma Kwasnica, fellow lactivist and natural childbirth advocate from Montreal Canada, put out a call that I couldn't answer fast enough.  She was creating a global network to support milk sharing.  Emma had known a midwife in Arizona named Shell Walker who had a small local facebook page called "Eats on Feets" that encouraged and supported milksharing in her neighborhood, and Emma asked Shell if she could use the catchy name for her Global Network, and thus Eats on Feets Global was born. I jumped up and jumped into the fray immediately and created the Eats on Feets- South Western Ontario page.

With in a couple of weeks we had over 100 local pages in 22 countries around the world, with more pages being created almost weekly. Emma lead us and kept us together and guided the creation of the network with her amazing personal strength and her vision. Our goal was to encourage informed choice on our pages, to be completely non-commercial, and to work with transparency and openness. It was exciting and exhausting all at the same time. While we were happy working away helping mothers who needed breastmilk find mothers with extra milk to give, problems were about to arise that we were not prepared for.

First of all Shell Walker and  her associate Maria Armstrong decided that our small FAQ, that we had written for the pages and the eof.org website, was not good enough and they pulled it down, leaving the admins and moms on our pages with out an info page to reference for questions.  This started much grumbling among the admins and when days stretch into weeks without the FAQ, the discontent started to spread.  Finally in February 2011 Shell and Maria presented their version of a FAQ to the Global Admin group.  This was not a FAQ, it was a reference manual over 50 pages long, with detailed medical information and claimed itself to be the ultimate manual on how milk sharing should happen between mothers.  The EOF Global admins were not happy and believed that this reference manual would open up the network to liability issues and most of the admins were not comfortable with handing over medical information when we ourselves are not medical professionals. When admins came to the Global group to try to discuss their misgivings about the manual and ask for changes to be made, they were ignored by both Shell and Maria. In response to this, a group of us came together to write a simple FAQ that the EOF Global Admins would be comfortable with using.  We worked for 3 days solid, night and day to get it done.  During this time things in the EOF Global admins group deteriorated significantly and many of us started to seriously worry about the future of working with Shell and Maria when they were incapable of listening to the admins and daily changed their mind about all sorts of fundamental ideals about the network and where it was heading.

Then the shocker came, in the form of a mass email from Shell Walker to all the EOF global admins.  Shell grandly announced that SHE was trademarking the name "Eats on Feets" and had created "terms of use" for all the admins to follow.  She buttered us up by saying that the pages were our own to keep and to run, but the small print stated that she had the over all power of veto and could take our pages away from us at her discretion.  The Global admins were shocked and outraged at this announcement. Shell did not ask any of us for our opinion, she didn't involve any of the admins in her decision. There was no transparency. Further, they made changes to the eof.org site that included deleting Emma's name completely, naming Maria as the goto person for the creation of new pages, and stated that admins were now "breastfeeding educators" though almost none of us have any training or credentials to claim that.  I was shocked and to be frank, completely freaked out by everything that was happening. 

On March 2nd 2011 Emma, myself and a group of admins made the final decision that we could no longer align ourselves with Shell Walker and her companions, and could no long work under the trademarked name of "Eats on Feets" and it's Terms of Use. At this point we moved forward and changed the name of our global network to Human Milk 4 Human Babies Global Network.  Of the 300 admins that made up the global milksharing network, 270  decided to rename their pages to Human Milk 4 Human Babies, and approx 20 admins choose to keep their pages named Eats on Feets and to stay with Shell Walker's TOU.

The first thing we did was to create new HM4HB pages to replace our old EOF pages- unfortunately Facebook does not allow pages to change their name after they have 100 "likers".  We announce to our members and "Likers" that we had changed the name of our network and that we were moving to our new pages. A couple of days later all the former EOF admins received a second email from Shell trying to convince admins to stay with her.  Then came the shock that none of us could believe was possible.

On March 7th, I was desperately trying to help a mom who had just posted on my SW Ontario EOF page find lactose and gluten free breastmilk.  I got up from my computer for a few moments only to return to discover that my eof page was gone.  Completely.  I cursed Facebook, thinking it just a glitch, I sent messages to the other admins on our page.... then I received the dreaded message from Facebook, the EOF SWOntario page had been deleted: "We have removed or disabled access to the following content that you have posted on Facebook because we received a notice from a third party that the content infringes or otherwise violates their rights" Over 60 eof pages were deleted that day, leaving hundreds of babies without the milk they desperately needed. My self and my fellow admins did not receive any warning. Needless to say the grief and anger of the HM4HB admins was all encompassing. We raged and we sobbed. But our resolve to build Human Milks 4 Human Babies into an amazing milksharing global network grew immensely, and our disgust for Shell Walker and her co-conspirators knew no bounds. But deleting pages wasn't enough for Shell and Maria, they also hijacked pages, kicked out the local admins and took them over- Israel, Tasmania, Hungary, Singapore and Nederlands ... and others were stolen from their proper admins and are now being run - in english- by people who've never even stepped foot in those countries or have any knowledge of their customs or language.

Shell Walker and Maria Armstrong have done everything in their power to rewrite the history of EOF, including deleting Emma's involvement completely, and insisting that they are the "Same" global network. They are not. They are a few people out of the network that decided to keep on using the name "eats on feets", the real network is made up of the 270 admins that changed names to re-create a truly global network. Shell and Maria have repeatedly changed their mission, restructured their organization and just recently announced that they will be involved in commercial endeavors with a company in Britain. They have no concept of Informed Choice, do not work even slightly through transparency- for their admins nor the people that look to their pages to find human milk. They say that "it's all for the babies" and that the mothers "own" the eof pages, yet they have repeatedly put their own interests before getting human milk to the babies that need it.

Shell and Maria will tell you that none of this is true, but the former eof admins have proof- we have screen shots of all the conversations, we have all the messages and emails that went back and forth between Shell and some of the admins, we have every single post that Shell and Maria made right from the very beginning of the network. For some of this info feel free to visit Eats on Feets- the ugly truth.  

We have the Truth.

...we have the global network.

And we HAVE created an outstanding milksharing network. Emma put together a group of twenty admins to be Peer Helpers to help run the various ad hoc groups and discussions on consensus, governance, and to create our brilliant Mission and Vision Statements. We do all our work with full transparency and run on consensus so that every Admin in our network can have their say. We are getting human milk to human babies every single day all over the world. We now have over 300 admins, in over 60 countries all over the world.

We Rock.

Mother-to-mother human-milk sharing: what’s not to like?

This is a fantastic guest post from, James Akre. I'm hoping to have lots more of his amazing words to post here in the future!!! 

In May last year I was privileged to deliver the GOLD10 inaugural presentation, which was called: What is the problem with breastfeeding? I concluded with ten proposals for immediate action, for example the need to stop referring to breastfeeding as ‘best feeding’ and define it rather as ‘normal feeding’; and to cease talking about ‘the benefits of breastfeeding’ and focus instead on ‘the risks of not breastfeeding’.

My next-to-last proposal was in two parts: evaluating ‘the amount and value of human milk produced and consumed worldwide’, and ensuring that ‘human-milk banks become a routine component of healthcare infrastructure everywhere’.

The model I had in mind was the classic community blood bank. In a bit more than a century since such banks began functioning, they have become as ordinary as they are indispensable.

I don’t know how you see it, but from both a practical and historical perspective, what began to surface only six months ago – Internet-based, non-commercial, mother-to-mother human-milk sharing – strikes me as being a bit like the fall of the Berlin Wall in 1989 or the Arab Awakening of 2011.

If you think I’m being melodramatic, consider the totally unforeseen consequences of the act of one mother, in October 2010, searching on line for breast milk for her child. Here we are, six months later, with a vast and still-growing milk-sharing system in place in some 50 countries on all continents.

Despite its popularity – indeed, owing to its popularity – this contemporary variation on a practice that is as old as our species has become the focus of stern criticism and woeful warning from public health authorities, notably Health Canada, the French agency Afssaps, and the United States Food and Drug Administration. What is going on here? This is how I would describe the current state of play.

On the one hand, media reports suggest a convergence of well-informed and highly motivated women extending their control over the availability and use of human milk. Caregivers of babies who need breast milk are connecting with mothers who are able to donate breast milk using two Facebook-based networks, Eats On Feets and Human Milk 4 Human Babies.

These networks provide a platform for women to share their milk in a safe, ethical manner. This is done in the belief that they are capable of making informed choices, free of coercion; taking into account information on the benefits and risks; and reducing exposure to pathogens, including by pasteurisation. The overriding operative principle is that all who are involved in milk-sharing take full responsibility for their individual course of action and its outcome.

On the other hand, the formal position staked out by some public health authorities and health professionals can be summarised in three short words: Just say no! Why this dogmatic view?

Well, for starters, it’s the easiest way to reduce to zero milk-sharing’s inherent health risks. But this approach fails to take account of the inherent health risks of a child not receiving breast milk, which appear to have got entirely lost in the shuffle. It is rather a question of relative risk and how to manage it and minimise potential harm.

Despite the mass of scientific and epidemiological evidence to the contrary, in far too many environments breast milk and breastfeeding continue to be seriously undervalued, even as the nutritional merits and supposed safety of infant formula are greatly exaggerated. In these circumstances, infant formula is perceived as the ‘obvious’ alternative to a mother’s milk. But as we observe the rapid, and geographically and culturally diverse, expansion of mother-to-mother human-milk sharing, it is clear that growing numbers of mothers are radically dissenting from this unphysiological status quo.

In demonstrating their heightened awareness about how their babies should be nourished, these mothers are also giving eloquent expression to the World Health Organization’s infant-feeding recommendation, with its explicit nutritional hierarchy, that has been in place since 1986: milk at the mother’s breast; expressed milk from a baby’s own mother; milk from another healthy mother; banked human milk; and, lastly, infant formula. This is just one of the reasons why I always define formula not as the best alternative to a mother’s milk but as the least-bad alternative.

It’s hardly surprising that some in the public health and medical establishment regard this Internet-based milk-sharing model as a challenge, even a threat. It certainly has the right ingredients: a system that operates outside its influence, that can’t be regulated, and where mothers alone exercise control. But rather than resisting and dismissing it out of hand, the constructive approach would be to engage in ways that help make it as safe as possible.

Before closing I would like to return briefly to what I said, during GOLD10 and a few minutes ago, about ensuring that ‘human-milk banks become a routine component of healthcare infrastructure everywhere’. In the light of the mother-to-mother milk-sharing model described above, I want to assure you that I am no less enthusiastic about this proposal today than I was a year ago. If anything, I think it has become still clearer to me why it is so important.

It is at best naïve and uninformed, and at worst intellectually dishonest and culpable, to discourage mother-to-mother milk sharing while instructing mothers to stick with traditional human-milk banks, which follow a careful protocol designed to protect babies. Reality contradicts this dismissive injunction. According to reports, on a good day milk banks manage to cover no more than half the actual demand. Thus, they wisely husband available milk for the most vulnerable babies, especially the very sick and premature. But at US$3-5 a fluid ounce or about 30 ml, even if milk were available, few parents could afford such luxury.

Some observers appear to be anxious that mother-to-mother milk sharing threatens the few under-supplied banks. I don’t have the evidence to demonstrate it, but I am inclined to believe that expanding direct human-milk sharing might well spur human-milk banking by increasing awareness of the significance and availability of women’s milk, persuading more mothers to donate, and thereby increasing the number of banks and available milk volume.

Thus, I see mother-to-mother milk sharing as complementary to donor milk banking and not its competitor. Let us resolve to do everything we possibly can to ensure that this is always the case.

  * * *

1 Commentary prepared by James Akre, Geneva Switzerland, and delivered on line during GOLD11 (Global Online Lactation Discussion) on 13 May 2011 http://www.goldconf.com/hottopics-speakers.html.

A Funny Thing Happened on the Way to the Milk Bank...

This is a wonderful article, written by an amazing woman whom I'm lucky to call "friend".

Enjoy!

A funny thing happened on the way to the milk bank...

By Jodine Chase

Six months ago today on October 27, 2010, a Facebook status update flashed across my computer screen, burning just a little brighter than most. I must see hundreds of Facebook status updates and Twitter messages and email subject lines over the course of a day.

This one, I remembered.

"Human milk sharing, woman-to-woman, goes global" was the title, from Emma Kwasnica's Informed Choice: Birth and Beyond Facebook group. I remember a mental "hmmm" as it slipped on past.

I remember thinking, "it's about time somebody took charge of this and put access to mother's milk in the hands of  the mothers!"

The notion of re-establishing the mother's milk bank in my city was starting to feel very remote after years of effort with little result. It's been 25 years since we had a milk bank here in Edmonton. This Facebook milk sharing page idea seemed so simple, so easy. Just let mothers connect with each other. Let them decide how to screen and whether or not to pasteurize. To heck with jumping through hoops and getting the doctors and the medical professionals on side - just let the moms do it.

Within hours I noticed it had increased from one message to a buzz on my Facebook - people were talking about this, sharing news of the birth of this global milk-sharing network.  Every few hours I'd see another message, status update, post talking about Emma's global milk sharing network idea. It was starting to have a "tipping point" feel about it.

A few days later I met a longtime breastfeeding advocate at a coffee shop - and there she was, talking about this milk sharing idea on Facebook. It had moved from Facebook to face-to-face. Within a few days a local community page was set up, the sure enough, there they were, all the usual suspects, people who have been passionate about the need for a milk bank here, active on the page, offering their time as admins. 

It's six months later. I've seen many matches happen. We've had people post about life and death, "I-have-no-milk-and-this-baby-won't-tolerate-anything-else" needs, and ordinary, "I-just-need-milk-for-a-few-days-until-I-get-over-the-flu-and-rebuild-my-supply" needs. Mothers of preemies with overflowing freezers have donated. Matches have been made where women ship milk via Greyhound and Purolator. We've also had women who have received milk from their next-door-neighbours. Literally, their next-door neighbours.

There's been local news coverage and global media attention. Our federal health department issued a precautionary statement. A paediatrician working to establish a milk bank in Toronto was called upon to explain this upstart global Facebook milk sharing phenomena at the US FDA's day-long milk bank meeting in Washington, D.C. 

Hollywood movie stars talked about donating extra milk stored in their freezers for babies in need, and stars with adopted babies like Neil Patrick Harris and Elton John talked about sourcing human milk on talk shows and in magazine interviews.

I'm not going to pretend it's mainstream. But in the last few months friends and acquaintances and relatives have come up to me in person, or engaged me in chat on FB and shared with me their own stories of wet-nursing, milk sharing, tribe nursing. Stories I'd never heard before. About the time they were sick and a neighbour brought over breastmilk. About the day they had to go to the hospital and a friend wet-nursed their baby. About their own freezer stashes and how they came forward to help women and babies in need. Women younger than me have spoken about doctors asking them to bring milk into hospitals for babies who aren't thriving. Women have said, matter-of-fact, "oh, my sister and I nursed each other's babies all the time.

These women are talking about it now because it feels safe  to talk about it. It doesn't feel icky or taboo anymore. It doesn't feel as if no-one else will understand - now when there's people talking about this global milk sharing network right on your Facebook. Your sister is doing it, your daughter is doing it, and you find out about it because she talks about it on Facebook. It MUST be "normal." That's the real power, I think, of this global milk sharing network on Facebook - the power to bring all these stories out of the closet.

Emma Kwasnica, six months ago today you put out your call. You asked mothers to organize themselves on Facebook to create a women-to-women milk sharing network. And they have. Today Human Milk 4 Human Babies is a global milk sharing network with almost 300 administrators, 125 community pages in almost 50 countries around the world.

There has been a seismic shift in attitudes about human milk and there is no going back from that. Authorities are concerned about safety and are scrambling for alternatives including improving access to human milk through "official channels."

Will there be more milk banks because of this global milk sharing movement?

I hope so.

But with mothers sharing milk openly and freely, connecting via Facebook and using other social media tools, will milk banks even be needed? I almost hope...not.

Front page of the Toronto Star this morning, "Donor Breast Milk is Greatest Gift for Sick Babies" http://www.parentcentral.ca/parent/babiespregnancy/babies/breastfeeding/article/896373--donor-breast-milk-is-greatest-gift-for-sick-babies