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Showing posts with label failure to thrive. Show all posts
Showing posts with label failure to thrive. Show all posts

Thursday, December 9, 2010

Infant Formula: It's not "Good Enough"

Before the  formula lynch mob hangs me for the following comment, I just want to say something:  This is not about guilt.  This is not about trying to make mothers who've used formula feel guilty.  If you want to debate the "Guilt Issue" go read my article "Breastfeeding: guilt, statistics, support, and making a choice"   and then we'll talk.  This is not about feeling guilty for using infant formula. This is about not having to "choose" to use infant formula. This is about actually having a choice and making the best choice for your baby and your family.

When breastfeeding is difficult, or when it goes terribly wrong, it can be absolutely devastating for mother and baby.  Mothers who have done their research and made the choice to exclusively breastfeed their babies already know that "breast is best", they know that breastfeeding is NORMAL.  More importantly they know about the risks associated with feeding your baby infant formulas. So when nature throws moms a curve and forces them to have to rely on something other than their own breasts to nourish their child, it can be completely overwhelming.

The first thing moms need to do is to get professional help.  See a certified  Lactation Consultant/IBCLC to try to work through the problem:  Is it a poor latch?  Why is baby's latch not good enough?  Is baby tongue tied?  Does mother simply need help with positioning?  For most situations if you fix the latch you fix the supply problems.

But what if the problem isn't so easily fixed?  What if the problem is one that is unfixable?  What then?  Babies need to be fed and when the mother is not able to produce enough milk to exclusively breastfeed, then they have to turn to another source of nutrition. Up until the last 60 or 70 years, the natural thing to do would be to use donor milk or a wet nurse- whether it was your sister, cousin, aunt, mother, friend or another local mother who was already breastfeeding her own baby.  Mother to Mother milk sharing and tribal nursing was so common that is was the accepted method of feeding babies who needed milk.

Now of course we are living in the era of commercially prepared infant formulas.  "Wet nursing" is a word that's fallen out of fashion and tribal nursing, if done at all, is done behind closed doors.  Now if a mother is unable to produce enough breastmilk the medical machine automatically hands her a can of formula and sends her on her way. WHY? Why formula instead of donated breastmilk?  Because infant formula is a huge industry and pays out millions of dollars in advertising and promotions, sponsors medical associations and medical schools, buys doctors fancy briefcases and sports cars, sends hospital executives on Caribbean cruises and gives maternity wards thousands of cans of their product to use and give away.  Money talks, and "Breastmilk" doesn't have any executives to pay off government officials to use their products.

Up until the 1980's there were breastmilk banks scattered all over North America to facilitate the feeding of preterm and fragile infants in hospital NICUs.  Then came the AIDs scare and the vast majority of milk banks closed their doors- leaving just 10 banks in the US and one lonely milk bank in Canada. I plan on doing some investigating into the closure of these milk banks because I'm a firm believer that money talks and if doors were closed, then someone somewhere told them to close and paid for them to stay that way. There is only one industry that stood to gain anything from the closure of breastmilk banks.  Call me a conspiracy theorist, but if it looks like a duck and quacks like a duck, I'm going to call it a duck.

Recently the Canadian (and US) governments have been talking about the need for Breastmilk Banks, about how vitally necessary breastmilk is to our most fragile citizens.  Dr. Sharon Unger was quoted in The Toronto Star in November as saying:
“We’ve long, long, long wanted a milk bank in Ontario,” says Dr. Sharon Unger, a Mount Sinai neonatologist.
“Our hope is that we would supply milk to all of Ontario, so we’d have depot sites or collection sites throughout the province and we’d be a central processing plant,” says Unger, who is medical director of Toronto’s Milk Bank Initiative.
The group is currently in negotiations with the provincial health ministry to fund the project. Unger says a final price tag has not been determined, but that it would be a multi-million-dollar venture.
“It does of course cost more to process human milk than cow’s milk,” she says.
...and as I said at the time:
Applause, yes applause.  It's a wonderful thing that the media has jumped on the band wagon and is making public announcements like this, I mean,  any publicity is good publicity KWIM? Horray for Breastmilk!
But I have to admit that it irks me.  Mothers and Doctors, like Dr. Jack Newman, have been crying out for Milk Banks for Years- YEARS!!!! Not only that, but Canada does have a Milk Bank in Vancouver BC... a milk bank that they have been trying to close down for years!!  I wrote an article on the topic just a couple of months ago: Canada Needs Milk Banks!!!
And I still agree, We NEED milk banks!!!  But you know what? If we wait around for the government to get off their bureaucratic asses to build even ONE milk bank.... I'll probably already be a grandmother!!!  And when we get milk banks, will they help the babies that are healthy but need milk?  Will they give milk to mothers with low supply?  Adoptive mothers?  Mothers with babies that have special needs like Anaya? NO, they won't.

So we return to the original topic:  What if the mother isn't able to exclusively breastfeed?  What if she has low supply? What if the problem isn't so easily fixed?  What if the problem is one that is unfixable?  What then? Up until recently your only choice would of been feeding your baby infant formula.  Not much of a choice is it?

Now  you can choose to feed your baby donated human milk.  Mothers have had enough of waiting for the bureaucrats and money grubbers to build milk banks.  Now mothers have taken back their autonomy and are supporting other women and families.  Milk Sharing is the wave of the future.  Milk sharing is making a difference and helping families and babies.  And Human Milk 4 Human Babies is leading the way!!!

Here is another amazing story of one mothers struggle to breastfeed her baby and how milk sharing made a huge difference in her life!!!




Ruby's  Story
By Kim Parent

"I can’t remember when I made the decision to breastfeed my daughter – I just know that not breastfeeding never occurred to me. There were many compelling reasons to nurse, including cost, health benefits, and convenience. My partner and I collected books about breastfeeding during pregnancy and we educated ourselves about the subject. I learned what myths and traps to look out for, and prepared myself to stand up against the well-meaning medical staff who might want to supplement my baby with formula. Fortunately I had a trouble-free birthing experience.

However, within the first week it became obvious that something wasn’t right. Ruby would not keep her latch for more than a minute or two. She would unlatch, crying and screaming, over and over again. After several tearful days, we called an IBCLC. She was finally able to tell me why my daughter was so upset: I have breast hypoplasia, also known as IGT (insufficient glandular tissue). Hypoplastic breasts never fully develop, and they lack an adequate amount of milk-producing mammary glands. I was heartbroken.

My lactation consultant wrote a plan of action that would hopefully allow me to increase my supply while supplementing my daughter. With great effort, I was able to approximately double my milk production, to a maximum of a few ounces per day - not nearly enough to meet Ruby’s needs. We were supplementing with approximately 20 ounces of formula per day. We were not prepared to accept that formula was “good enough”,  being fully aware of the risks associated with artificial feeding. We could see that her little body was having trouble digesting the formula. She was very constipated, and she would scream and cry for hours. We tried many different brands, but her symptoms were always the same. I turned to my lactation consultant for advice on donated breast milk.

In all of Canada, there is only one milk bank, located in Vancouver, BC. Currently they cannot keep up with the demands of their own NICU. Even if there was enough milk available, the cost can easily be prohibitive. At $1.25 per ounce (which is much less than the cost of banked milk in the U.S.), it would cost us at least $750 per month to feed Ruby exclusively breast milk.

For our family, the answer was informed, mother-to-mother milk donation, not unlike wet nursing. We found several online resources to facilitate this, including the Human Milk 4 Human Babies Global Network on Facebook. Thanks to fifteen generous women, my daughter has received thousands of ounces of breast milk. She has not had a drop of formula in over three months! She is a different baby now – no more colic, spitting up, or constipation. She is hitting all of her developmental milestones and is just a radiantly beautiful and happy little girl. I still grieve the exclusive breastfeeding relationship that I had planned to have with her. However, I finally feel confident that she is receiving the best nutrition that I can possibly provide for her. I am eternally grateful to the amazing families who have helped us and for the support I have received from those around me.



Ruby at 3 weeks old


Ruby at 3 weeks old - at this point she had been supplemented with formula for over 2 weeks








Ruby at 3 months
Ruby at 3 months old, exclusively breastfed!

















At 6 months old- exclusively breastfed!

A beautiful healthy Ruby at 6 months old!!

Wednesday, December 8, 2010

Why we Share: A Personal story of Milk Sharing

With Human Milk 4 Human Babies being in the news all over the globe recently, the media keeps asking "Why?"   Why are mothers willing to share their breastmilk, and why are mothers looking for breastmilk to feed their children?  Health Canada and The American Food and Drug Administration are issuing warnings about  sharing breast milk with women online. The following is an amazing story of one mothers struggle to nurse her baby and how donated breastmilk saved her sanity and possibly her sons life.



Our Story Using Donor Breastmilk

by Lynn Heinisch on Monday, 06 December 2010 at 03:46
There has been so much said about milk sharing, positive and negative, that I feel as though I should try and get our story out there.

Finding Breastmilk donors wasn't scary to us, my husband and I, because. . . .we MET online. This was back in 1997. Back before the whole internet boom, before it was common to meet people on line. And for my friends and family, it was scary. I didn't understand why, as if you knew me and you trusted me, you should trust my judgement.

Fast forward to 2008:
We, my husband and I, decided we wanted to have a family. We did our research and decided on a hospital birth attended by a midwife. For that we had to drive to Princeton, NJ. It was what we wanted, so it wasn't a big deal for us . . .until the miscarriages started. First one. Then two. Then three. I was told the same thing every time:

"Some times these things happen"
"Most women have at least one miscarriage."
"Don't worry, it'll happen."

I didn't believe them. I went and was worked up for 'infertility.' Invasive testing. Tons of blood work. They didn't see 'anything wrong with me' so on we went to try Clomid.

I was so low. So tired. On our second round, I got pregnant. I got excited. I saw a heartbeat. I was further excited! The risk of miscarriage drops drastically with a heartbeat, right? Then. I miscarried. They asked me to 'harvest' my child and bring it to them so they could test him because I refused a D&C while there was still a heartbeat.

After that, we were done. I couldn't take any more. I was exhausted. Then I got pregnant again. It was twins. I lost one of the twins and after that, I had a very normal pregnancy. My son had a single artery cord and when he was born was IUGR.

He lost weight at the hospital, which is normal for breast fed babies, and I was constantly harassed about wanting to breast feed. He was too tiny, my breasts were too big, my nipples too large, his mouth too small. And I was told to supplement. I had a sign on his 'warmer' that said 'no bottles, no pacifiers.' but I found out they (they nurses) gave him a bottle. Any time he was taken away to do whatever he came back with a pacifier. I should of know better.

He screamed. Oh, did he scream. I was told 'babies cry.' That some don't 'tolerate' formula, but it's 'normal.' I was given the go ahead to take him off formula at 6 weeks.

 At eight weeks he was still screaming. Still nursing constantly. He was 10lbs 6oz. I was proud. I did it. I got him to breastfeed. I got him to thrive.

We came back two months later and my son had lost weight. Over two pounds. I was told to give up breast feeding again. I said no. I said there has to be something wrong. I asked if I should remove food from my diet. If he was allergic to something in my milk. I was told no, no, no. Even my midwife said no.

We did bloodwork. My midwife kept accusing me of having IGT. I found it hard to believe that I could have IGT as I have DD breasts. So, I didn't believe her. I didn't have PCOS. If I did, I would have trouble getting pregnant, not STAYING pregnant, right? It had to be something else. I caved and we tried formula again. I gave him two oz and the screaming started. My husband gave him another two oz and the diarrhea started. Watery, mucousy diarrhea. I called the pediatrician right away and told them he wasn't tolerating it.

"He needs to adjust to the formula, try a different kind."

I was sent back to the store to find 'allimentum' and stat bloodwork was ordered as he didn't tolerate that either. His sed rate was 19, 20 was 'high' but his liver functions were dangerously high. We were sent to CHOP, Childrens Hospital of Philadelphia. It was during this time that I looked at gluten. I figured it couldn't hurt. So I eliminated it from my diet, but the doctors at CHOP weren't impressed. I was told in the ER that I should give up breastfeeding and I asked him how much medical training he had in breastfeeding. He admitted to me about 2 hours.

Liam- two hours before being admitted to CHOP
Little Liam being admitted to CHOP



We were shown to our room, I informed the nurses right off the bat that we were attachment parents, that we were cosleepers, my son was intact and was not to be retracted, we wore him. All things I'm sure were foreign to them. We weighed his diapers (to see how much urine he was putting out) and we weighed him pre and post feeds. I tried explaining to them we nursed to sleep, and they didn't understand that. They didn't understand why I didn't put him in a crib.



They didn't get babywearing either

I eventually had to talk to the resident and tell them they weren't respecting our beliefs. It was then they backed off. I never got weights threw the night, they assumed I wasn't making enough and that I had IGT. Lactation came in. She told me to give up. That I could pump around the clock but because she thought I had PCOS and IGT that I wouldn't produce more milk.

I showed her.

I pumped every chance I got and I started producing more.

She was shocked.

We were discharged after five very long days. I felt horrible as my husbands first fathers day was spent at CHOP or running home to feed our dogs or do diapers. I left feeling defeated. I had decided to blog my time in CHOP, mostly for sanity, but so people could know our son was sick. It was easier for me to tag people in a note so they knew what was going on rather then call everyone. It also saved me from having to repeat myself which is something I really hate to do.

It was then, after my son was 'diagnosed' with Failure to Thrive that I met Molly. Molly is one of my donors and Molly blogged about me. She read my note on Emma's page and her frustrations with CHOP inspired her to help us. Molly's blog put us in contact with another mother who had a large stash and offered her milk to us. I had two friends who gave us about 50 oz each, but this woman, this woman was a milky goddess.

She had to of given us over 1000 oz of milk. Easily.

She was embarrassed that she produced so much so I have never shared her name with anyone. It was then my son started to thrive. I noticed a change in him. He was happier, but he still cried when he got the bottle of EBM. He nursed
more. He gained weight. But he would always have bad tummy pains after the EBM. I always thought, at the moment, they had broccoli. But it wasn't that. It was gluten.

We were now being seen at our pediatrician weekly for weight checks. He gained. Kept gaining. Then I felt comfortable enough to take him off of the EBM and solely go back to breast. We never looked back. My sons last bottle of donated breastmilk was the last week of July.


liam at 7 months old


Our pediatrician was uncomfortable with the EBM at first. She warned me about viruses and diseases and I told her I was more comfortable with the EBM then the Formula. I also told her we screened our donors. She asked me a few questions and smiled. She wanted to make sure we were being smart. And I would like to hope that todays mothers ARE being smart.

In June my son weighed 8 lbs.
In September 14 lbs
In October 17 lbs
And now weighs almost 20 lbs
Liam's pic taken two weeks ago!


Tomorrow the FDA will address 'informal milk sharing.' I use quotations because I don't personally see it as 'informal.' I see it as women, reaching out to women and becoming friends. I still have contact with all my donor moms, some are closer then others, but I still know them. I want my child to grow up and know them. I want people to stop looking at me like I have a third eye when I mention breast milk saved his life.

I'm sure the FDA will try and outlaw this. Because they see children like my son expendable. They don't care about my son. The AAP doesn't care about my son. If they did, they would of listened to me at CHOP. They would of sent us to gastric. They would of tested my son for Ciliac, for allergies. But they didn't. They didn't believe a mother.

So forgive me if I don't believe you. Like you, I'll make my own informed decision. And if it's different from yours, I don't really care.

Wednesday, December 16, 2009

"Babywise" is very unwise and dangerous

"On Becoming Babywise" by Gary Ezzo..... I'm not sure that there is another book out there that has caused as much damage and heartbreak and controversy as this one. Nor another book that has been published and accepted by huge groups of people to be the "Best parenting advice", even though the books basic premise goes against just about every major paediatric association and health organizations well founded and researched advice - especially when it comes to infant feeding practices.

The book’s author is Gary Ezzo, a pastor with no medical background and does not have any academic background in any field that has any relevance to his books. Ezzo has been proven to misquote studies and twist information around to suit his needs- even facts that clearly go against everything he preaches when the entire research papers or article has been reviewed. He has been excommunicated from several churches and is considered to be "unfit" for public ministry. But the most telling fact is that his own children are estranged from him and refuse to have any dealings with him. This is particularly scary since the Ezzos say the goal of their program is friendship with adult children and urge that parenting philosophies, including their own, be judged by "observ[ing] the end results."...

...Obviously his parenting philosophies do not stand up to the end results that he advertises.

A paper released by the American Academy of Paediatrics states:

On Becoming Babywise,
has raised concern among pediatricians
because it outlines an infant feeding program
that has been associated with failure to thrive
(FTT), poor weight gain, dehydration, breast
milk supply failure, and involuntary early
weaning. A Forsyth Medical Hospital Review
Committee, in Winston-Salem N.C., has listed
11 areas in which the program is inadequately
supported by conventional medical practice.
The Child Abuse Prevention Council Of Orange
County, Calif., stated its concern after
physicians called them with reports of
dehydration, slow growth and development,
and FTT associated with the program. And on
Feb. 8, AAP District IV passed a resolution
asking the Academy to investigate
“Babywise,” determine the extent of its effects
on infant health and alert its members, other
organizations and parents of its findings.


The more research you do about Gary Ezzo and his books and teachings, the more you begin to realize that it is a dangerous trap for new parents to fall into. Personally I (and my Natural Mothering partner Helen) have made it our goal to removed as many copies of the "Babywise" books from circulation as possible. When we find them in second hand stores and thrift shops we buy then and tear them up into little pieces. Spending $2-3 to save some unsuspecting family from heart ache is a small price to pay.

Below are some links for more information about the "Babywise" books and principals, and about the Ezzo's.

.... or just do a google search of your own.... but be prepared to be horrified by some of the stories you'll read!





‘Babywise’ advice linked to dehydration, failure to
thrive
by Matthew Aney, M.D.


Evaluating Ezzo Programs


Monday, November 30, 2009

"Breastfeeding & Circumcision"

This is an excellent article on the topic of male circumcision and the effect it has on Breastfeeding in the US. From one of my favorite Blogs: Peaceful Parenting

Thursday, November 26, 2009

Breastfeeding & Circumcision



written by Yuki
edited by Danelle


"Today the claimed "benefits" of circumcision have been found to be without merit, while new benefits of breastfeeding are found all the time. Circumcision is not recommended by any medical or health organization in the world, while breastfeeding is universally recommended by all medical and health organizations.

The American Academy of Pediatrics (AAP) now states that babies should receive exclusive breastmilk (nothing else at all) for a minimum of the first 6 months of life, and continue nursing for at least the first 2 years of life. The World Health Organization (WHO) states that breastfeeding should be done for the first 2 years of life at a bare minimum and most infants world-wide receive their mother's milk past the age of 2.

Unfortunately in some U.S. cities, circumcision is still more common than breastfeeding. According to 2008 CDC statistics, only 26% of babies in the U.S. are still breastfed at 6 months of age, and the figure drops to just 19% by 12 months of age. At the same time, approximately 50% of baby boys born in the United States continue to be circumcised at birth. Most startling is that lactation reports from several U.S. hospitals show that it is circumcised baby boys who are most at risk of "failure to thrive" and are least likely to have a 'successful' breastfeeding relationship with their mother. Intact boys tend to latch better, nurse more effectively, and breastfeed longer than their circumcised peers...."

HERE for the complete article